How often is it that the entire PH community is in one room?
This PHamily reunion that we have every two years is a great opportunity to
recognize some of the outstanding contributions that individuals have made to
our shared cause. At the dinners tonight and tomorrow we will introduce
a group of remarkable members of our PHA PHamily.
Our PH heroes this year have accomplished the following feats. Read more about them in the program book on page 36.
- PH mother helped with local support group and annual fun walk
- PH mom who is a PH Email Mentor
- Created super hero capes for pediatric patients
- Has spearheaded PHA’s PH Care Centers initiative
- These women know how to throw a party, with a DJ, raffles and a candle-lighting ceremony
- Without any direct connection to PH, co-leads a support group and helped create a third group in Puerto Rico
- Raised more than $200,000 at their 2013 event
- Founded and leads the Long Beach Support Group
- Has organized an annual fun walk for the past 11 years since 2003
- Created “Just Breathe” Lung T-shirts and posters and regularly blogs about living with PH
- Event organizers who raised hundreds of thousands of dollars for research along with a strong partnership with the local Chamber of Commerce
- Has helped found three major medical programs at PHA
- Organized the largest 5K in Louisiana history that raised more than $130,000
