Showing posts with label Roadmap to a Cure. Show all posts
Showing posts with label Roadmap to a Cure. Show all posts

Thursday, March 27, 2014

Throwback: Merle Reeseman’s Road Trip to 2006 Conference



Traveling all the way from Grove City, Pennsylvania, to Minneapolis, Minnesota, Merle Reeseman blogged about her 12-hour road trip to our 2006 International PH Conference!  She explains how she prepared for such a journey while living with PH and being on oxygen. With her husband in the driver seat and extra supplies in the trunk, the Reeseman’s hit I-80 in search of a cure.

Bright and early Wednesday morning June 21, 2006, we’re ready to go but let’s go back to Tuesday. The car was loaded to the point that we didn’t have enough room for the condenser. It was a choice of that or my clothes and you know which one won out. I had asked my oxygen supplier for a transportable liquid oxygen tank so I could fill my Helios Marathon and not have to worry about a refill or changing tanks every couple of hours while at the conference or on the way to the conference. The liquid oxygen portable took up half of the back seat and when they put in the condenser that took up the other half of the back seat. I still had to pack a wheelchair and suitcases; the wheelchair took up most of the trunk space. Then bags of medicine (I’m on Flolan); coolers for the ice packs; it all had to fit in the car. Well, the condenser lost out. If I wanted a change of clothing, something had to stay. I’m so glad they brought everything over on Tuesday and we had enough time to reorganize and regroup. Thank you HCS. We calculated how much oxygen I would use for a two day round trip including sleep time and each day at the conference and ordered a condenser from Minneapolis for the evenings/sleeping. It would be close but it should work. Extra tanks of oxygen were put in the car – just in case. Have you ever noticed how we PHer’s live a “just in case” life?


Thursday, March 20, 2014

Throwback: Ken Schmidt's Road to Conference 2006

At our 2006 International PH Conference and Scientific Sessions in Houston, attendee and PH caregiver, Ken Schmidt, gave a recap of his involvement with PHA's Conferences since his wife's diagnosis in 1998. Our 2008 Conference was themed Roadmap to a Cure, so Ken told his story using road analogies. How fun is that?

Ken's wife, Joanne (left), participates
in the PHA Fashion Show at Conference
My road trip began in 1998 when my wife of only 5 years was diagnosed with PPH. Joanne’s brother had been diagnosed 3 years earlier with this awful disease and so Joanne was motivated to find as much information as she could about PH.

In 2000, Joanne was like a mid-sized sedan traveling the PH interstate, while I was just like a small U-haul trailer. Joanne found the PH map and headed out to Chicago, while I tagged along hoping to find useful items to carry back to Long Island. Joanne unhitched me at the male only caregivers session, which was co-led by Jerry Paton. Jerry was like a confident 18 wheel big rig. He had been traveling the PH interstate and offered us honesty, compassion, and hope. He told us there would be potholes, speed bumps, and slippery conditions ahead, but he also saw brand new roads being paved, that someday we would be traveling along.